Monday, June 11, 2012

Our First Kiss

Our First Kiss

Let me just say, that this is the BEST first kiss I've ever had!!!!! I've waited a long time for it, but it was worth the wait :), and I finally kissed the Prince I've always dreamed about.

I haven't written this blog, because I've been waiting until I could do it without crying. But I've finally realized that it's going to be impossible for me to not cry my way through it, so here goes.....

My Charleston has a tracheotomy now. Those are hard words to say. I never knew that I would have a grandchild with special needs like him. And it's been quite a journey, from NO!!!!! not my grandson.....to WHY my grandson????......to LOVING him and FIGHTING for him. And now, our first kiss.

Charleston had his surgery at Lucile Packard Children's Hospital at Stanford on Friday, May 18th. I'm not going to go into details, but suffice it so say that it was the longest day......and then week.......of my life, no thanks to Stanford. It was SO bad that the Medical Director showed up in Charleston's room, and had Ashley give her names and details, and they are investigating all that happened. It is only because my Charleston has a will to survive that he is still with us. And that is why I haven't written this blog; because it's so upsetting that all of us (especially him) had to go through what we did.


Ashley getting ready to go into operating room
Last picture with his mask :)
Just out of surgery.
Snuggling with her baby.


Cooling him off.


Recovery Time.

Even Koda, my granddog, was rooting for him!


Look at this sweet face.

A little bit loopy!!!!

Getting his hair washed.

I couldn't stop looking at his face.

1st hospital bed....without mama:(

We watched LOTS of movies.

Happy mama, knowing the worst is finally over.

Ashley was standing up asleep :(. She wanted to hold him so bad.

Note from daddy when he left to get some sleep.

He's turned the corner - yay! Getting his coloring back.

Reading a good book.

Finally....moving him from a crib to a bed with mama.

Boy did he sleep better now!

Little mama couldn't take her eyes off of his beautiful face.

Nap time - TOGETHER. 

Nana giving him a bed bath. 
We have never been able to brush or comb his hair because of his mask. He cooed the entire time she did this.
Ahhhhh.......relief........

Sleeping soundly.

Ashley doing her first trache change.
HOME!!!

First thing - BATHTIME!!!! 
I've never seen anyone so beautiful.

Prince Charleston!

Nap time on mama.

First walk without a mask!
SO handsome.

Isn't he beautiful? We are thrilled that this is behind us. He is still in "recovery mode", so we are having a very quiet month with him. He's getting used to it, and we are getting used to the new equipment and sounds.

Thank you, God, for giving me my Charleston. And for letting me keep him. And for giving me my Prince to kiss.


11 comments:

  1. OMGosh Teri, this is wonderful! Of course it made me cry and not just because Cambria and I are going through the same thing at the same time--who wouldn't cry after reading this?! Your Charleston has so many who love and pray for him daily. He's such a fighter! Keep on being the most awesome Nana fighting along with him. Here's to many many more years of Prince kisses.

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  2. Gosh I am crying reading this! Thank you for sharing it!!!

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    1. Awwwww, I didn't mean for you to cry. I'm the one that keeps doing that!!!

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  3. Beautiful Teri,
    It's amazing how this makes us appreciate the little things, like seeing/touching his face. I remember the first time they put the bipap on Danny I cried. Where's my baby? How cool that you can find some joy in a difficult time in seeing Charleston's face.

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    1. It's the best ever!!!! I'll tell you about it more when we get together one of these days :)

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  4. What a remarkable little boy, and family. It is so nice to see his sweet face. Sorry you all had to go through what you did to achieve this.

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  5. Oh Terri,
    I did not know about the surgery... how did I miss that? The pictures are amazing and your precious
    Charleston is beautiful. That little boy knows how much he is loved and I know he is going to keep
    getting stronger. What a miracle all of you are. I feel
    humble and honored to know you.
    Love always,
    Janice

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  6. Hey Teri, I'm just glad he didn't turn into a frog after you kissed him. Praises to God for your little man Cash and that the surgery turned out ok even with the extra bumps. Life's a crazy ride and you can close your eyes and scream in fear, or you can keep on trucking with a smile on your face enjoying the bad with the good. Love you all.

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    Replies
    1. Hahaha Cathie..........NO this one didn't turn into a frog like all the rest!!!!

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